Can you say BUSY!!! We are making up for all of the time we were in the hospital. Lyris has us running around like crazy selling Girl Scout Cookies!!
Please forgive me for not updating. Our computer has a virus and is out of commission. Time to get a new one.
We will be back soon at the library right now, they don’t give you much time on the computers!
Lyris had a wonderful time doing this interview. She made friends with the security officer. He showed her around his desk and allowed her to check out all the security cameras. She really enjoyed that and told him she wants to work there. She also, sold a box of Girl Scout cookies to the camera man. That’s my girl! Since she has completed her chemotherapy, she is definitely getting back to her normal outgoing self!
After almost 8 months of chemotherapy Lyris had her LAST dose at 4:30pm today. Lyris will be home friday. It’s not over, we still have to do follow up care and scans to make sure the cancer is gone and stays gone FOREVER. We will be going through another surgery soon to remove the port in Lyris chest. (this is how she received her chemo) We will let you know when that will be as soon as we find out.
The next two years she will continue with follow up and will be considered a survivor after two years of being cancer free! i2012 has been a challenging and life changing year for our family. All the prayers and love we have received throughout this journey has helped us get through. We can’t thank you all enough!
Stay tuned, because we will have a lot more going on and pictures to show. You know Lyris hair will be growing back. Can’t wait to share those pics with you.
Since the last post so much has happened. Thanksgiving day we were in the hospital. We had planned on having Thanksgiving at the hospital with friends and family. However, Lyris ended up getting a very high fever around 1:00pm Thanksgiving day and we ended up cancelling all visitors.
December 15, 2012 Lyris went to the “North Pole” with dad. Children’s Healthcare of Atlanta and Delta put on a “Fantasy Flight” for the kids. All of the kids from the Aflac Cancer Center were invited. They picked up all the kids in Limos. They had a police escort to Atlanta Hartsfield-Jackson Airport where they boarded their flight to the “North Pole”. Once they arrived (they drove around the airport on the plane:)) They were greeted by Santa and Mrs. Claus and falling snow. They were interviewed by 11Alive News. (Watch Video) They had a GREAT time!! Lyris was sooooo excited. She told me that Santa lost weight. I guess he was too skinny.
CHRISTMAS- This was the best Christmas ever!! Big shout out to the fraternity Alpha Phi Alpha (Georgia State University) They brought Christmas early for Lyris and JD and even did a little step show for us.:) It was great! They were great! We have been so blessed to have great people enter our lives. We will be posting pics and the video of them stepping. Thanks a lot guys we really appreciate it. Christmas day- We were all home TOGETHER!! The kids opened their presents and we laid around the house all day. Lyris and I laid in the bed and watched “A Christmas Story” twice. Our lives have been so busy, it felt good to be home together doing NOTHING.
The blog has been neglected. Since the last post, I had to do some major work on ME. I had not had an opportunity to take care of me. Some time as parents we feel guilty when we do something for ourselves. At some point, you have to make sure your “good” so you can be “good” for those that need you the most. I had the worst breakdown I’ve had since this journey began and my health began to be affected. STRESS WILL KILL YOU! I got it together now (for the most part).
The past few weeks has been a roller coaster. Lyris has had a couple of fevers which has caused her to be in the hospital a lot more than normal. The second fever was caused by an infection in her line. Everyone in the house has been sick. The children at the kids school have been sick. Lyris got a third fever (out of nowhere) when it was time for her to come home. She ended up having to stay the night. They never gave her any medicine for the fever. The fever went away within an hour and never came back??? We’re calling this fever a mystery?? Lyris has been sick a lot more than normal.
Lyris had been doing sooooo well!! We are so close to completing treatment, but for some reason, things are getting more difficult. Because of the infection, Lyris chemo completion date is behind a week and we will be in the hospital for Thanksgiving.
We are staying prayerful!!