When I write these posts, I try to make it informational, and as up beat and positive as I can. The reality is this, our lives have been turned upside down and inside out. Our lives have been forever changed.
Lyris is doing exceptionally well in her progression. We couldn’t be happier and more proud of her. Her parents on the other hand are having some struggles and difficulties.
This emotional roller coaster is not a ride I would recommend. As soon as we think it’s about to come to a stop….here comes another steep, scary drop.
What do you do when your home is now the hospital? What do you do when you can barely work and the income you ARE bringing in goes to gas and eating out at the hospital? What do you do when your 2-year-old says ” I want to go home” because he’s tired of being in the hospital? What do you do when you get behind on your rent/utilities? What do you do when you can’t stop crying? What do you do when your car breaks down? What do you do when people keep staring and pointing at your child as though she has two heads? What do you do when you’re the one who has to keep it all together?
Truth is…this is our reality right now and this is how we’re doing.