Lyris had two doctor appointments scheduled for today. The first was to meet with the orthopaedic surgeons. They will be performing her surgery to remove the cancerous bone. The second was with her oncologist. It’s a routine checkup after chemo treaments.
Lyris complained yesterday (intermittenly) about having a sore throat. We gave her something to drink and she didn’t really complain after that.
This morning she woke up with a fever of 101.5. Needless to say she wasn’t feeling all that great. She began complaining about her throat again as well.
I thought she may be coming down with a virus. J.D. hadn’t really been eating too well and his bowel movements were abnormal. They both were going to the same place during the day. So I thought they may have picked up a “bug.”
The surgeon informed us that her surgery is scheduled for July 19th. This surgery is more serious than we had anticipated. The surgeon explained that 80% of her femur would have to be removed. Our options would either be amputation or a cadaver bone would need to be used to replace that part of the removed bone. Of course we said “let’s find a cadaver bone”.
Next, we head to see Lyris oncologist. Whenever we finish our fabulous 4day/3night stay at the beautiful Children’s Hospital, we have to come back for a checkup.
Chemotherapy destroys both good and bad blood cells. During her checkup, her blood counts are tested. If they are too low, her chances of fighting off an infection are greatly decreased. Right now she is in a neutropenic state which means, her white blood cells are low. An indicator of this is usually high fever and pain (sore throat, earache, headache.)
Due to her low blood counts, her oncolgy team thought it would be best to do a blood transfusion.
Once the transfusion was complete, Lyris was feeling good again. She started being the talkative Lyris we’re used too. Since her throat had been hurting, she hadn’t eaten anything all day.( We had been out since 7am and it was now 7pm) I told her she needed to try to eat something.
I said would you like some soup, grapes or pineapples? Her vote was pineapples. As soon as she took a bite of the pineapple she sat it down and said she didn’t want it. I quickly noticed her breaking out in hives. I’ve seen this happen before. It was after she ate something with peanuts, but never pineapple??? She’s allergic to peanuts. She eats pineapple ALL the time! I immediately pressed the nurses button and told them what was happening. She called for our nurse but she didn’t come as fast as I needed her to. So about 30 seconds later, I went to the nurses station and said “I need one of you now.” (Politely of course) I think they all came! Her nurse did come finally. She was in another patients room.
Apparently, her nurse was suppose to give Lyris Benadryl before the blood transfusion to alleviate any allergic reactions.
Lyris had an allergic reaction to the pineapple. They all worked as a team and within a matter of minutes, Lyris was herself again.
Right now she is doing very well and hopefully we’ll be able to leave Sunday. We’ll keep you posted.