All posts for the month June, 2012

It Takes A Village

Published June 26, 2012 by lyrisamil

As you know, life is a journey. You go through all sorts of good, bad and indifferent situations. In this moment, we trust in God and believe whole heartedly there is a reason why we were chosen to go through this. Yes, it’s difficult and our lives will forever be changed, but we realize that someone reading this right now will be helped, changed or motivated to do something they may not have ordinarily done because of our situation.

When tragedy strikes, we want to know “why”? We haven’t necessarily found out “why”, but since going through this, relationships that were once lost have been found. Relationships that were strong, have gotten stronger. Relationships that never existed have been formed. We thank God and we thank You! All of the love, prayers, hospital visits, and messages of encouragement, keeps us uplifted and keeps our spirits high.


There’s No Place Like Home

Published June 21, 2012 by lyrisamil

After 6 days of being in the hospital, we are finally home!  It feels soooo good to be home.  The hospital offers a lot of fun activities for the kids, but there is no place like home. You can’t get any beauty rest because the nurses and doctors are constantly in and out the room.  

Once Lyris began feeling better (still wasn’t eating) she got out of the room and met a friend named Haylee.  Haylee had a Nintendo DS like she did.   They synched their games, turned the radio on and layed out on bean bag chairs for a couple of hours.

On Monday, Lyris had visitors that joined us for an “Art Party.”  We had fun painting different pictures.  On Tuesday, Happy Tails (therapy dogs) stopped by for a little while to hang out.  We met a dog that was a pirate, a cute little corgi that did tricks and a huge dog that was taller than Lyris.  Later that day, Lyris had more visitors.  We had a great day. Lyris played all day long.  We hung out in the Garden, the hospital library, did some coloring and the girls even popped some popcorn! 

Tuesday night, I went home and daddy stayed at the hospital.  On my way back to the hospital, I was instructed to bring Lyris a chicken sandwich and french fries from McDonalds.  Why is this important?  This was the first time Lyris wanted to eat since we had been at the hospital.  She was feeling better.

Fathers Day at the Hospital!

Published June 21, 2012 by lyrisamil

We didn’t get out on Sunday liked I hoped. Lyris stayed in the bed all day Friday and Saturday and didn’t leave the room. She didn’t eat the entire time we were there. She ended up having to get a platelets transfusion. I made sure she was given Benadryl BEFORE the infusion. We didn’t have any issues with her having an allergic reaction this time.

Sunday she was feeling much better and was excited about it being Fathers Day.

We ended up spending Fathers Day in the Hospital Garden. We had orignially planned on celebrating Fathers Day at Stone Mountain Park on Saturday, but we made the best of it. We weren’t able to give daddy the father’s day we intended, but we will! Jamil doesn’t mind of course, but he deserves it. One of the foundations gave the dad’s a goody bag and a $10 gift card to Starbucks, so that was nice.

Checkup Turned Blood Infusion

Published June 16, 2012 by lyrisamil

Lyris had two doctor appointments scheduled for today. The first was to meet with the orthopaedic surgeons.  They will be performing her surgery to remove the cancerous bone. The second was with her oncologist.  It’s a routine checkup after chemo treaments.

Lyris complained yesterday (intermittenly) about having a sore throat. We gave her something to drink and she didn’t really complain after that.

 This morning she woke up with a fever of 101.5.  Needless to say she wasn’t feeling all that great.  She began complaining about her  throat again as well.

  I thought she may be coming down with a virus.  J.D. hadn’t really been eating too well and his bowel movements were abnormal. They both were going to the same place during the day. So I thought they may have picked up a “bug.”

The surgeon informed us that her surgery is scheduled for July 19th. This surgery is more serious than we had anticipated. The surgeon explained that 80% of her femur would have to be removed.   Our options would either be  amputation or a cadaver bone would need to be used to replace that part of the removed bone.   Of course we said “let’s find a cadaver bone”.

Next, we head to see Lyris oncologist. Whenever we finish our fabulous 4day/3night stay at the beautiful Children’s Hospital, we have to come back for a checkup.

Chemotherapy destroys both good and bad blood cells. During her checkup, her blood counts are tested. If they are too low,  her chances of fighting off an infection are greatly decreased. Right now she is in a neutropenic state which means,  her white blood cells are low.  An indicator of this is usually high fever and pain (sore throat, earache, headache.)

Due to her low blood counts, her oncolgy team thought it would be best to do a blood transfusion.

Once the transfusion was complete, Lyris was feeling good again. She started being the talkative Lyris we’re used too. Since her throat had been hurting, she hadn’t eaten anything all day.( We had been out since 7am and it was now 7pm) I told her she needed to try to eat something.

I said would you like some soup, grapes or pineapples? Her vote was pineapples. As soon as she took a bite of the pineapple she sat it down and said she didn’t want it. I quickly noticed her breaking out in hives. I’ve seen this happen before.   It was after she ate something with peanuts, but never pineapple??? She’s allergic to peanuts. She eats pineapple ALL the time! I immediately pressed the nurses button and told them what was happening. She called for our nurse but she didn’t come as fast as I needed her to. So about 30 seconds later, I went to the nurses station and said “I need one of you now.” (Politely of course) I think they all came! Her nurse did come finally.  She was in another patients room.

Apparently, her nurse was suppose to give Lyris Benadryl before the blood transfusion to alleviate any allergic reactions.

Lyris had an allergic reaction to the pineapple. They all worked as a team and within a matter of minutes, Lyris was herself again.

Right now she is doing very well and hopefully we’ll be able to leave Sunday. We’ll keep you posted.

The Best “Nurse” a Girl Can Have

Published June 10, 2012 by lyrisamil

  We left the hospital Thursday (6/7/12) after being in and out for the past three weeks doing treatments.  The medicine she took that made her feel really sick and not herself is called Cisplatin and Adriamycin.  This is the medicine she just finished Thursday.  Today is Sunday (6/10/12)and she is GREAT!!! 

Once we get home from taking this medicine, Lyris has to continue on fluids for five days and get neupogen shots for ten days.  This is to help restore some of the nutrients and cells she may have lost during treatment.  If you have been keeping up with the blog, you know we are suppose to give her these shots.  The first time we had other people administer the injections.  They made it easier for her, and easier for us to deal with the reality of Lyris getting a needle stuck in her  arm everyday  This time daddy has been her nurse.  Daddy has been doing an excellent job!  Lyris hasn’t cried one time.  Daddy makes everything  better!

 Lyris hasn’t been nauseated or sick.  Well…..that statement isn’t completely true.  I told her to brush her teeth and she told me she didn’t want to because it was going to make her sick.  I thought this was her way of trying to get out of brushing her teeth and told her to brush anyway.  She had been doing so good, I didn’t think we would have a problem.  Within a matter of seconds, she started to vomit.  When she was fininshed, She said “mommy, I told you”.  I felt horrible. 

Shortly thereafter she was in my face talking and I said “can you try to gargle some mouthwash please, because your breath is KICKING!!”  She did and we haven’t had any more issues.

Best 6th Birthday Ever!!

Published June 4, 2012 by lyrisamil

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Lyris birthday was a big hit!  Thank you to everyone that helped to make Lyris 6th birthday a wonderful and memorable one.  We would like to send a special thanks to the 3rd and 4th Platoon for setting off Lyris Birthday with their wonderful gifts.  We would also like to give a HUGE thanks to Nicky Signature Cakes for donating the wonderful cupcakes and to Tara Amos Photography for capturing this special day for us.

Thank you to everyone that helped decorate and put the food together.  (What you guys don’t know is that we had a decorating competition going on right before the party, Payton and I won!!)  Thank you to all of you that were able to celebrate with us.  Lyris had a wonderful time and so did we.

After getting out of the hospital Friday night, Lyris had a party filled weekend.  She spent Saturday at her friend Destiny’s birthday party at the Children’s Museum.  She had a GREAT time hanging out with some of her friends she hadn’t seen in a long time.

We will be in the hospital again for the third week in a row this Tuesday.  Then we will be on a three week break.  Yaaaaay!  This weekend of fun was much needed!