<Our baby is such a trooper. Lyris was released 2 days earlier than the doctors had initially stated. As you can imagine after having major surgery, Lyris is in a lot of pain. She is not able to walk. She is not allowed to put any pressure on her leg. However, she is in VERY HIGH spirits!! Lyris is her normal self. Lyris has a new ride…..A Wheelchair! She is loving it of course, because she can wheel herself around.
Please continue to pray for Lyris. Her fight is not over. Surgery was just one step in the battle. She will begin chemo treatment again in about 2 weeks until the end of this year 2012.
Since Lyris is doing so well, we will be taking a much-needed vacation for about a week. We will be back on the blog in about 2 weeks. We are taking a much-needed break from everything. So please be sure to check back. If you haven't purchased your bracelets in support of Team Believe/Lyris, please do so. September is Childhood Cancer Awareness Month. We will be hosting an event, (not sure what kind just yet). Please hurry up and get your bracelets to show your support.
Be sure to share this site with your friends, family, coworkers and enemies. You never know who may be inspired or who can inspire us.
Thanks for your prayers and support. We love you!
As Lyris started coming too, she began blurting out all kinds of things. “Do I have my new bone?”, “Do I have all my toes?” It was kind of funny! “Mommy, guess what, I had 7 tootsie rolls yesterday, a rice krispy treat from Zaxby’s, chicken tenders, french fries and 4 cookies?” I said “Really!?” Then she fell back to sleep. FYI: None of this was true! We hadn’t been too Zaxby’s in a while and tootsie rolls??? Lyris kept falling in and out of sleep saying all sorts of things. At one point I asked her if she wanted to watch t.v. and she said yes. With in a matter of seconds she fell back to sleep. I turned it too Good Luck Charlie (one of her Disney shows) and asked “Lyris what’s this?” She opened her eyes and said “Your asking me questions???” as if I was getting on her nerves and went back to sleep again. I just laughed.
Later, my sister Annie was saying bye to Lyris and out of no where Lyris screamed as loud as she could at her and said “YOU NEVER STAY THE NIGHT WITH ME!” Lyris had previously explained to auntie Annie how she wanted her to have a “sleepover” with her at the hospital when she had her surgery. Auntie was going to stay, but on another night.
We were all shocked! I turned around and saw my sister crying. (I was laughing…I’m so bad) It seemed as if she had just been reprimanded. Needless to say Auntie Annie pulled up a chair, sat down, got a blanket and stayed the night!
Lyris surgery was a success! Through all the tears and worries, she made it through. All of you that prayed and passed on her story made this milestone so much easier to bear. It’s amazing to see so many wonderful people, people who don’t know us, people who have never met us, praying for us. Your prayers helped us through and GOD definitely heard you. Thank you from the bottom of our hearts!
Lyris surgery lasted about 4 hours. As you know, the doctors had originally said they would have to remove about 80 percent of Lyris’ bone. Thanks to all the prayer warriors, they ended up only having to remove about 50 percent! Thank you lord! Additionally, they were able to save her growth plates which they didn’t think they were going to be able to do.
Lyris is a trooper. The doctors were overjoyed at how well she did. Lyris is in a lot of pain as you can imagine. I’m going to try to give you a visual of what we seen and heard when we saw her for the first time after surgery,
Lyris was laying in the bed. She looked liked she was waking up from a deep sleep. She had tubes in her nose that was providing her with oxygen. She had all kinds of lines and tubes hooked up to her from a machine. Her leg was wrapped up in a big blue leg brace. I had a moment where I looked at her leg and became overwhelmed with emotions. I felt as if I were going to vomit. I excused myself and went to the restroom and cried. (Thanks Annie & Shalonda for rescuing me, Thanks daddy for not breaking down with me) I got myself together and went back to my baby’s side. She was coming down off the anesthesia and pain medicine.
We began to talk to her and let her know we were there. This is the point of the story where your not supposed to laugh, but you can’t help it.
The first thing she asked was “Where am I”?
Continue reading next entry….Coming down off Anesthesia
We have been back home for 6 days straight. It feels soooooo good to have a little bit of normalcy back. The kids are back in camp and back in there beds. Even though we (Mommy & Daddy) hate our bed, we have fallen in love with it all over again. Boy, you don’t know what you have until it’s gone. Ahhhhh, this nice, old, uncomfortable, king size bed is soooo comfortable right now! (Yes we’re that happy about having our bed back 🙂
We had a full weekend. Lyris attended two birthday parties and a baby shower. J.D. and I had a much needed “Mommy and Son” Day on Saturday and poor daddy just went to work. (Daddy’s day of rest is coming soon)
So much attention has been focused on Lyris, that J.D. had been left in the shadow.
J.D. and I spent part of the day running errands and then we hung out at his favorite place….Chuck E. Cheese! He had a ball! After leaving Chuck E. Cheese, we got caught in the rain. J.D. enjoyed that very much. He liked getting rained on and so did I. It was just something about that moment, it was fun, it was something we needed. If it rains again before Thursday, we are all going out to play in the rain. (Shhh, they don’t know it yet) 🙂
The kids are doing what they do best……wrecking the house and fighting, and we’re doing what we do best…. yelling at them to “clean up” and “cut it out.” Oh, how we love the dysfunction.
We were home friday around midnight. We stayed in the house all day Saturday trying to catch up on some rest. Lyris had a slight fever and it went away. Sunday, we decided it was safe to hang out and have a little fun. We went to Dixieland. A small amusement park, where the kids were able to run around and have some fun.
Lyris forced me to get on a ride with her that I was afraid of. I screamed my head off while she sat there quietly. She probably couldn’t believe I was screaming.
Once we were finished, we went home and noticed she was feeling warm. She had a temperature of 102. That was an automatic trip to the emergency room. Once we got there, her temp had gone down, but they noticed her blood counts had dropped since Friday and admitted her.
So here we are again…..back in the hospital, while we’re suppose to be on a break before surgery. Lyris is in good spirits right now but mommy’s not.
We have been in the hospital four weeks in a row. We are exhausted, overwhelmed and a little stressed. it’s time for a break! Friday, July 6th, it’s time to go home and have a little break before Lyris surgery!
Everything had been going well, until the day we got ready to leave the hospital. Lyris woke up Friday morning with a slight fever. We were hoping to be leaving the hospital by 8:00pm. If the fever lasts for an hour or more, she can’t go home. If her fever is at 100.5 that’s an automatic stay. (that’s what happened to us Father’s Day weekend) They checked her fever an hour later and it was normal. Whew!
Hours passed and everything was looking good. At 6:30pm they had to check to make sure her urine was clear of the methotrexate (chemo). That usually takes about an hour. As long as she’s clear, we can go home. That’s why I figured we would be gone by 8:00pm. Things went down hill from here.
Around 8:00pm we were told, the machine they use to check the urine was broken and they had to send her urine to Scottish Rite. The nurse said it would be at least an hour and a half before we would know anything. Then the nurse proceeded to check Lyris vitals and guess what, she had another slight fever. I said “Can you use another thermometer, because I think that one is broken.” She did and the reading came out higher. I was ready to cry. I turned the air up in the room and made Lyris take off her sweater. The nurse came back around 10:30 and said we were good to go. Lyris had cleared and her temperature was normal.
Yaaaaay!!!!!! We were packed and ready to go. We got to the car and the car wouldn’t start. Needless to say, we were all crying at this point. What a day!!
I hope we don’t have to spend any more holidays at the hospital! Even though we didn’t get to hang out at Stone Mountain Park on Father’s Day like we originally planned, we did eventually do it a week later. We had a very nice, relaxing day. We got there late in the evening once it cooled down a bit. We took a train ride around the park. The kids LOVED it. They are so easy at this age (2 & 6) After the train ride, we found a comfortable spot on the lawn and watched the laser show and fireworks. During the show they had music playing. Our kids love to dance! Lyris will dance until she notices she’s being watched. Then she will try act like she’s shy. J.D. on the other hand will dance and dance and dance until he passes out! J.D. had fans and began putting on a show. He started break dancing, shaking and doing flips. Not to be out done by her little brother, Lyris started to grow her own fans. At some point, the music slowed down and Lyris began doing ballet moves. It actually didn’t look that bad. It was hilarious! Lyris was serious and her dance was soooo dramatic. It looked like it was choreographed. (Ms. Dawn would have been so proud, her dance teacher). Needless to say, we ended up having a nice Father’s Day, even if it was a week later!
The hospital usually has a lot of activities for the kids, but the Fourth of July, they had nothing. The hospital was a little gloomy. There was nothing to say it was the Fourth of July. We asked the nurses if there was anything going on. We wanted to know if there were any fireworks happening, No one knew anything.
My sister was there with Lyris, while I went home to take care of a few things. My plan was to bring back some sparklers and light them in the garden. How about I left my wallet at the hospital! Now it’s time to improvise. I had about $4 cash. I went to Dollar Tree and purchased glow necklaces and bracelets. The kids enjoyed them. Once it got dark, I took all the necklaces and bracelets and hung them up all over the room and in the bathroom. Lyris didn’t know I put some in the bathroom. So when she got up in the middle of the night to go, she had a little surprise! It’s the little things that put a smile on our face.
The next day we had a new nurse, she asked us, “Did you guys go upstairs and watch the fireworks?”
I was stunned and said “Upstairs?” She said “Yes, if you go to the sixth floor, you can see the fireworks from downtown.” I said, You mean to tell me, I was running around here with “glow sticks” and we could’ve been watching fireworks? We asked the other nurses and nobody knew anything.” Nurse Jenn said, “These YOUNG nurses DON’T know anything”