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All posts for the month October, 2012

Don’t wait to be called, just show up!

Published October 23, 2012 by lyrisamil

When you go through a major event in your life, you expect certain people to be there.  Good or bad.  You just know “this” person or “that” person is going to be there.  No questions asked.  When there not, you can’t help but to be disappointed and hurt. 

We’re experiencing that right now.  Out of everybody, you’re not here for us,  you haven’t called, you haven’t tried to help or ask how you can help.  You haven’t shown up?? We get it, we know life is busy.  We know you have your own family to take care of.  We know! We also know that if you want to make time, you will.  We have been going through this cancer battle for six months now. You haven’t had a few free hours to visit Lyris or call? Apparently, we’re not that important to you.  But, what if it was you going through this crisis and not us?  How would you feel?  Stop, seriously, stop and ask yourself, “What if that was me”, What if that was my son?  What if that was my daughter?  What if this was my life?

Some of you may be wondering “Who are they referring to?”  Are they talking about me?  Maybe? “You” refers to a those people who claim to be “family” and “friends”. What would it take to get you to show up?  We’re six months in and you haven’t had time yet??  When will you MAKE time.  Most people make time when it’s time for a funeral.  We don’t want that.  Lyris loves visitors when she’s in the hospital!  She always ask, “Is anyone going to come see me today?  You don’t have to come bearing gifts. She has plenty of stuff. She just wants someone other than mommy and daddy all the time. She wants to feel normal. She wants someone to sit and play Candyland, cards, draw pictures, do crafts with her. Lyris likes to receive telephone calls while she’s in the hospital. Simple things.

I don’t mean to come across rude or anything but this is hard, very hard and we’re hurting. Thank you to all of the strangers and acquaintances that have shown up without hesitation. Thanks to those of you that have made meals or purchased meals for us. We really appreciate it! Thank you to the “Dance Moms” who stepped up and made it happen! We love you ladies!!!! Thank you to the friends that we haven’t spoken to in a while that have been there 500%. Thank you to the friends and family that go out of their way to sit at the hospital with Lyris or pick up JD or watch JD for us while we’re at the hospital. Thanks to the ladies that said “I can at least pay a bill for you”. They didn’t have to, but that was their way of helping. We appreciate all of you so very much!! Thanks for showing up!

Truth is……It’s harder than I make it sound in these posts.

Published October 3, 2012 by lyrisamil

When I write these posts, I try to make it informational, and as up beat and positive as I can. The reality is this, our lives have been turned upside down and inside out. Our lives have been forever changed.

Lyris is doing exceptionally well in her progression. We couldn’t be happier and more proud of her. Her parents on the other hand are having some struggles and difficulties.

This emotional roller coaster is not a ride I would recommend. As soon as we think it’s about to come to a stop….here comes another steep, scary drop.

What do you do when your home is now the hospital? What do you do when you can barely work and the income you ARE bringing in goes to gas and eating out at the hospital? What do you do when your 2-year-old says ” I want to go home” because he’s tired of being in the hospital? What do you do when you get behind on your rent/utilities? What do you do when you can’t stop crying? What do you do when your car breaks down? What do you do when people keep staring and pointing at your child as though she has two heads? What do you do when you’re the one who has to keep it all together?

Truth is…this is our reality right now and this is how we’re doing.

Chemo went out with a bang!!

Published October 3, 2012 by lyrisamil

Lyris completed her “High Dose” chemotherapy treatment (Cysplatin) on September 13!! YEAH!!!! This chemo takes everything out of her and makes her really sick. We went home Thursday night and ended up back in the hospital the following Thursday 9/20 due to a fever.

Lyris ended up having to get a blood transfusion on Friday and a blood platelets transfusion on Saturday. She had a really bad allergic reaction to the platelets. I had a “little” situation with Lyris’s nurse. She was a floating nurse and wasn’t used to being on the cancer floor. Not a good situation. Therefore, she ended up in tears by the end of the night. It was obvious my daughter was having trouble breathing and this nurse was taking her time. My sister ran out the room to get some other nurses and doctors to assist. After a while we finally got everything under control. The next day, Lyris was having some blurred vision. They said it was due to all the medication she received, which I thought that was the case. Lyris was released on Wednesday 9/26 and back to school on Thursday. Her vision is still a little blurry every now and then, but for the most part she’s doing well. We are going to have her vision checked.

I guess this chemo wanted us to remember it! We won’t forget you, we’re just glad your gone!!!