Sooooo, Lyris shocked us all this morning when she said she wanted to get up. Her surgery was completed around 9:30pm the night before and the next morning she was saying she wants to get up?!?! Huh???
Lyris has had a lot of surgeries and this was the most intense one. She has never been so eager to get up and moving. It generally takes her a couple of days to get out of bed. She kept asking for physical therapy so we finally obliged. She still has some pain (of course). She’s not quite ready to hold a conversation but she’s doing really well.
Lyris- “Can you call physical therapy” Nurse-“I already ordered it”
Lyris- (pause)- “It’s in a package?”
Nurse- (puzzled) “Huh??”
Lyris- “You said you ordered it”
We laughed hysterically!!! Physical therapy came. She got up and went for a ride in the wheelchair. They washed her up and put her back in bed. She’s in/out of sleep but doing well!
Lyris surgery started around 3. They just called (5:30) and said everything is going well and as planned. The surgery could take 4-6hrs. UPDATE @8:30pm. Finishing up. Going well. UPDATE 7/21 @7:30am. Surgery was completed around 9:30pm last night. She is in ICU. Everything went well. As long as everything continues to go well, she will be moved from ICU to a regular floor today. She is talking and surprisingly doing much better than previous surgeries. Keep the prayers coming!! Trying to get her to eat a little.
Trying to explain rotationplasty is difficult. It’s easier to show you than to tell you. Check out this link Bailey on “The Doctors” Bailey was around the same age as Lyris when she had her rotationplasty surgery. She is now a teenager in high school. We had a chance to meet Bailey, her mom Tiffany and siblings a few weeks ago. They have been wonderful in providing support and giving us a birds eye view in what to expect. They are the reason all of our worry and concerns have diminished. You guys ROCK!! Thank you so much!
Lyris will finally be able to be a kid again.
It’s funny how things happen. July 19, 2012 Lyris was just 6 years old and had her very first surgery to remove the tumor from her right femur. Who would have known 5 years later July 20, 2017 Lyris would be having her lower leg REMOVED by a process called Rotationplasty.
You think because the chemo is finished, the hair has grown back and the cancer is gone, life is GREAT! Welllllll, life IS great because we are alive and kicking. However, it’s emotionally draining on the entire family when we have to keep going in/out for surgeries. It’s especially hard on Lyris when she is unable to simply be a kid. Lyris right leg is shorter than her left, so she walks with a limp and has multiple shoe lifts. Lyris can’t run and jump. Lyris used to LOVE to roller skate, she can’t right now. Lyris has a bike, but she can’t ride it because she can’t bend her knee. Lyris can’t go to bounce houses and trampoline parks. WHY? Her knee doesn’t work and if she jumps her leg will break AGAIN. (We tried it once and that’s when we went in for another surgery last year in March) Everytime you have a surgery their are risks. Last year Lyris ended up with a staph infection after surgery.
People always say, “If I had known then what I know now” I would have done things differently. Honestly, in this situation, I think we would have done the same thing. When you hear the word “amputation” you automatically gasp and your in a state of shock. The first thing you ask about is other options. We tried the other options, they failed.
By the way, you just said Lyris name about 10 times. Please keep saying her name and lifting her up in prayer. Thank You!!
Can you say BUSY!!! We are making up for all of the time we were in the hospital. Lyris has us running around like crazy selling Girl Scout Cookies!!
Please forgive me for not updating. Our computer has a virus and is out of commission. Time to get a new one.
We will be back soon at the library right now, they don’t give you much time on the computers!
Lyris had a wonderful time doing this interview. She made friends with the security officer. He showed her around his desk and allowed her to check out all the security cameras. She really enjoyed that and told him she wants to work there. She also, sold a box of Girl Scout cookies to the camera man. That’s my girl! Since she has completed her chemotherapy, she is definitely getting back to her normal outgoing self!